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| Exploring
the Rights of Human Subjects Through a Classic Work In Literature:
Daniel Keyes’s Flowers for Algernon
Eugene
F. Provenzo, Jr.
School of Education
University of Miami
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Introduction
Flowers for Algernon is a classic novel by Daniel
Keyes that is based on an earlier short story of the same title.
It is widely taught at the 9th and 10th grade level in schools
across the United States. The novel tells the story of Charlie
Gordon, a 32 year-old retarded man with an I.Q. of 68 who is put
through an experimental treatment by scientists to boost his intelligence.
The story is told from Charlie’s perspective in a personal
journal that he keeps for the scientists.
This lesson plan uses Keyes’s novel to focus on ethical
issues involving the Rights of Human Subjects—in particular,
issues involving the use of subjects who are developmentally challenged
or highly vulnerable, such as prison populations.
Educational
Objectives
•
The student will better understand the ethical issues involved
when experimenting on human subjects.
• The student will reflect on the ethical issues of using
a human subject, and placing them at risk.
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Key
Concepts and Vocabulary
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Informed Consent
• Justifiable Risk
• Acceptable Risk
• Ethical Behavior for Researchers
• Responsibility of Researchers to Subjects
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Background
for Teachers
In July 12, 1974, the National Research Act (Pub. L. 93-348) became
law. It created a National Commission for the Protection of Human
Subjects of Biomedical and Behavioral Research.
The Belmont Report was developed as a result of the abuse
of human subjects in a number of government studies.
The Belmont Report represented the government’s most
important early efforts to address the appropriate use of human
subjects in research. It is a milestone in the study and implementation
of ethics in the United States.
Flowers for Algernon addresses a number of important ethical
issues including the ability of experimental subjects to understand
how an experiment might affect their lives, the obligation of scientists
performing a treatment to make sure that their subjects are aware
of how they might be affected, and the ethics of having a person
participate in a potentially risky experiment that might benefit
the advancement of science and humanity.
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