Selected Schiavo/PVS/PEG Bibliography

Please send suggestions for additional items to Ken Goodman, UM Ethics Programs, at ethics@miami.edu.

Scholarly, peer-reviewed articles, books

Allen MP. The Constitution at the threshold of life and death: A suggested approach to accommodate an interest in life and a right to die. American University Law Review 2004;53(5):971-1020.

Angus F, Burakoff R.  The percutaneous endoscopic gastrostomy tube: medical and ethical issues in placement.  The American Journal of Gastroenterology 2003;98:272-277.

Annas GJ. "Culture of life" politics at the bedside — the case of Terri Schiavo. New England Journal of Medicine 2005;352:1710-1715.

Blendon RJ, Benson JM, Herrmann MJ. The American public and the Terri Schiavo case. Archives of Internal Medicine 2005;165:2580-2584.

Canadian Medical Association Journal (editorial). The sacred and the secular: the life and death of Terri Schiavo. CMAJ 2005;172(9):1149.

Casarett D, Kapo J, Caplan A. Appropriate use of artificial nutrition and hydration — fundamental principles and recommendations. New England Journal of Medicine 2005;353:2607-2612.

Cassell EJ. The Schiavo case: A medical perspective. Hastings Center Report 2005;35(3):22-23.

Cranford R. Facts, lies and videotapes: The permanent vegetative state and the sad case of Terri Schiavo. Journal of Law, Medicine & Ethics 2005; 33:363-371.

Doukas DJ. "Family" in advance care planning: The family covenant in the wake of Terri Schiavo.Journal of Law, Medicine & Ethics 2005;33:372-374.

Dresser R. Schiavo:3 A hard case makes questionable law. Hastings Center Report, May-June 2004, 8-9. http://www.thehastingscenter.org/pdf/publications/hcr_may_jun_2004_at_law.pdf (requires subscription).

Dresser R. Schiavo's legacy: The need for an objective standard. Hastings Center Report 2005;35(3):20-22.

Eisenberg D. Should Terri Schiavo live or die? Aish HaTorah 2003; http://www.aish.com/societyWork/sciencenature/Should_Terri_Schiavo_Live_or_Die$.asp

Eisenberg JB. Using Terri: The Religious Right's Conspiracy to Take Away Our Rights. New York: Harper Collins, 2005.

Finucane TE, Christmas C, Travis K. Tube feeding in patients with advanced dementia: A review of the evidence. Journal of the American Medical Association 1999;282:1365-1370.

Gostin LO. Ethics, the Constitution, and the dying process: The case of Theresa Marie Schiavo. Journal of the American Medical Association. 2005;293:2403-2407.

Haig AJ. The persistent vegetative state. New England Journal of Medicine 1994; 331:1380-1381. http://content.nejm.org/cgi/content/full/331/20/1380 (requires subscription).

Hook CC, Mueller PS. The Terri Schiavo Sage: The making of a tragedy and lessons learned. Mayo Clinic Proceedings 2005;80:1449-1460.

Jennett B. The Vegetative State: Medical Facts, Ethical and Legal Dilemmas. Cambridge: Cambridge University Press, 2002.

Journal of Mass Media Ethics. An ethics of caring and media coverage of Terri Schiavo. Journal of Mass Media Ethics 2006;21(2&3):215-228.

Koch T. The challenge of Terri Schiavo: lessons for bioethics.Journal of Medical Ethics 2005;31:376-378.

Kunin J. Withholding artificial feeding from the severely demented: merciful or immoral? Contrasts between secular and Jewish perspectives. Journal of Medical Ethics 2003;30:208-212.

Lanier WL. Medical interventions at the end of life: What is appropriate and who is responsible? Mayo Clinic Proceedings 2005;80:1411-1413.

Lynn J, Childress JF. Must patients always be given food and water? The Hastings Center Report 1983;13(5):17-21.

Mappes TA.  Persistent vegetative state, prospective thinking, and advance directives.  Kennedy Institute of Ethics Journal 2003;13:119-139.

McMahon MM, Hurley DL, Kamath PS, Mueller PS. Medical and ethical aspects of long-term enteral tube feeding. Mayo Clinic Proceedings 2005;80:1461-1476.

Meisel A. The role of litigation in end of life care: A reappraisal. Improving end of life care: Why has it been so difficult? Hastings Center Report Special Report 2005;35:S47-S51.

Meisel A, Cerminara K. The Right to Die. New York: Aspen Law & Business, 3d ed.,2004.

Mitchell SL, Buchanan JL, Littlehale S, Hamel MB. Tube-feeding versus hand-feeding nursing home residents with advanced dementia: A cost comparison. Journal of the American Medical Directors Association 2003;4:27-33.

Multi-Society Task Force on PVS.  Medical aspects of the persistent vegetative state(first of two parts).  New England Journal of Medicine 1994; 330:1499-1508.http://content.nejm.org/cgi/content/abstract/330/21/1499? (requires subscription).

Multi-Society Task Force on PVS.  Medical aspects of the persistent vegetative state(second of two parts).  New England Journal of Medicine 1994; 330:1572-1579. http://content.nejm.org/cgi/content/full/330/22/1572? (requires subscription).

New England Journal of Medicine. After Quinlan: The dilemma of the persistent vegetative state(editorial).  New England Journal of Medicine 1994; 330:1524-1525. http://content.nejm.org/cgi/content/extract/330/21/1524? (requires subscription).

Nelson LJ. Catholic bioethics and the case of Terri Schiavo. Cumberland Law Review 2004-2005;35(3):543-574.

Noah BA. Life, death and politics:  The long good-bye.  Journal of Philosophy, Science & Law 2003; 3, October 2003, http://www.psljournal.com/archives/newsedit/noah.cfm.

Noah BA. Politicizing the end of life: Lessons from the Schiavo controversy. University of Miami Law Review 2004;59:107-134.

Ouellette AR. When vitalism is dead wrong: The discrimination against and torture of incompetent patients by compulsory life-sustaining treatment. 79 Ind. L.J. 1 (2004) .

Perry JE, Churchill LR, Kirshner HS. The Terri Schiavo Case: Legal, ethical, and mecical perspectives. Annals of Internal Medicine 2005;143:744-748.[Available at http://www.annals.org/cgi/content/abstract/143/10/744?etoc; subscription required.}

Quill TE. Terri Schiavo — a tragedy compounded. New England Journal of Medicine 2005;352:1630-1633.

Schatz GS. Reflections on Schiavo: Are medicine, ethics, and law enough anymore? Medical Humanities Report, Summer 2005;26(2) (Michigan State University): 1-3. [Available at http://bioethics.msu.edu/mhr/05s/reflections-schatz.html.]

Schneider CE. Hard cases and the politics of righteousness. Hastings Center Report 2005;35(3):24-27.

Shepherd LL. In respect of people living in a permanent vegetative state - and allowing them to die. Public Law Research Paper No. 153. (May 2005.)

Shepherd LL. Shattering the neutral surrogate myth in end-of-life decisionmaking:Terri Schiavo and her family. Cumberland Law Review 2004-2005;35(3):575-595. Abstract.

Sieger CE, Arnold JF, Ahronheim JC. Refusing artificial nutrition and hydration: Does statutory law send the wrong message? Journal of the American Geriatrics Society 2002;50:544-550.

Smith J. A good death, or a public one? British Medical Journal 2005;330:_.

Sulmasy DP. Terri Schiavo and the Roman Catholic tradition of forgoing extraordinary means of care. Journal of Law, Medicine & Ethics 2005;33:359-362.

Truog RD, Cochrane TI. Refusal of hydration and nutrition: Irrelevance of the "artificial" vs "natural" distinction. Archives of Internal Medicine 2005;165:2574-2576.

Wijdicks EFM, Cranford RE. Clinical diagnosis of prolonged states of impaired consciousness in adults. Mayo Clinic Proceedings 2005;80:1037-1046.

Wolfson J. Erring on the side of Theresa Schiavo: Reflections of the special guardian ad litem. Hastings Center Report 2005;35(3):16-19.

Miscellaneous journalism, advocacy, other

Cerminara KL. An Analysis of H.701. A Nova Southeastern University law professor provides a legal analysis of issues raised by a measure introduced during Florida's 2004 and 2005 legislative sessions.

Collins T. Dealers of death:The right-to-die movement is using Terri Schiavo. Are you next? Article posted at Planet Envoy! "Bringing Christ to the World." http://www.envoymagazine.com/planetenvoy/Update-TCollins-TerriS-Jan04-Full.htm

Darr K. Terri Schindler Schiavo: End-game. Hospital Topics 2005;83(2):29-31.

Fritz M. Last rights: How simple device set off a fight over elderly care. Invented for younger patients, feeding tube now figures In end-of-life debate. The Wall Street Journal, December 8, 2005, http://www.wsj.com (purchase required).

Johnson, Harriet McBryde. Not Dead at All: Why Congress was right to stick up for Terri Schiavo. Slate, March 23, 2005. http://slate.msn.com/id/2115208/

Marker R. Dying for the Cause:Foundation funding for the “right-to-die” movement. The Philanthropy Roundtable. http://www.philanthropyroundtable.org/magazines/2001/january/marker.html. According to its website, "The Roundtable is founded on the principle that voluntary private action offers the best means of addressing many of society’s needs, and that a vibrant private sector is critical to generating the wealth that makes philanthropy possible..."

Sisti DA, Caplan AL.  Would the Pope get a feeding tube?  Chicago Tribune Dec. 26, 2003; p. 21. http://pqasb.pqarchiver.com/chicagotribune/index.html?ts=1083898698 (search keywords for free preview, pay for full text).

Satire

Darney PD, Rosenfield A. The Supreme Court joins the multispecialty group practice of the Congress and the President (editorial). Obstetrics & Gynecology 2007;110 (2.1):226-227.

Counterpunch, March 21, 2005: "Feeding tubes for the Third World."

The Onion, April 6, 2005: "Terri Schiavo dies of embarrassment." (May require subscription.)

The Onion, April 13, 2005: "Preparing a living will." (May require subscription.)