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BY VICTORIA STUART
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While bridging the gap between academic research and reality is a constant challenge for University of Miami faculty, for Jones and other professors like him, the struggle has a direct impact on their lives. In the School of Medicine, associate professor Norma Kenyon searches for a cure for diabetes: Her seven-year-old daughter suffers from the most vicious form of the disease. In the School of Education, associate professor Elizabeth Harry works to educate teachers and families about children with special needs: Her own special-needs daughter died at the age of six. In the Department of Psychology, research assistant professor Kristin Kilbourn is conducting research on the connection between behavior and biology: Her mother died from cancer when Kilbourn was only 18, and she is convinced that nontraditional treatments could have prolonged her mothers life.. And in the School of Law, Jones teaches constitutional law: He grew up during a time when colored people were denied the basic American guarantee that all men are created equal.
In Kenyon's case, it provides the imperative for her research into a cure for diabetes. "There are many organizations and institutions in this country that are working on preventing diabetes, but there is relatively little being done to help the people who already have it," she says.
"But after working in a corporate environment for several years, I had
a strong desire to return to teaching and research," Kenyon explains,
"so I accepted a position at Duke University." During a short trip there to begin setting up a laboratory, she called
home to check on her children before boarding a plane to Miami and was
informed that her 14-month-old daughter was in the hospital. She had developed
dramatic-onset Type I diabetes, the most vicious form of the disease.
She was bleeding from several organ systems and unable to breathe on her
own. She remained on a respirator for five days. Following her daughter's initial illness, Kenyon left Duke to return to the University of Miami's DRI to pursue research into islet cell transplantation, the best hope for a cure. "The DRI is renowned nationwide for setting the standard on this type of research," Kenyon explains. "I came back here knowing the strength of the institute and hoping to play a vital role in developing a cure." Her research has most recently resulted in effective islet cell transplantation in monkeys, who have the closest immune system to humans. Kenyon is also active in educating patients with diabetes as well as their families. She frequently speaks to groups throughout the community and has worked with the institute's foundation to initiate an awareness campaign with the theme of "Don't Abandon this Generation." "Being a walking statistic has given me a unique perspective on my research," Kenyon says. "I look at things as both a scientist and a parent. When a treatment method is developed, and there are side effects or complications, I think, 'How would those side effects affect my daughter and others like her?' For example, an acceptable toxicity level to a scientist is very different from an acceptable toxicity level to a parent. "I'm grateful that my daughter is alive and to know that there's hope,"
Kenyon continues. "Dr. [Camillo] Ricordi (scientific director of the DRI)
is always telling us, 'Don't hope; just do it.'"
Harry was forced to resign from her teaching position to care for her child full-time. She eventually opened her own school and daycare center for special-needs children in Trinidad.
The center served more than 40 children and continues to operate today--as a nonprofit corporation operated by the students' parents. Harry turned the center over to them three years after her daughter's death at the age of six. Harry then left Trinidad for Syracuse University, where she earned a Ph.D. in special education. "After that experience, helping families understand and help loved ones
with disabilities became my driving focus," says Harry, who joined the
University of Miami in 1995. A faculty member in the Department of Teaching
and Learning at the School of Education, Harry focuses her research on
the experiences of families from ethnic and minority groups. She has completed
several studies and two books about the effects of culture and special
education. "I still carry that with me today. That's my driving force," says Harry,
who tells Melanie's story to every class of students she teaches. "I feel
that Melanie brought me a new perspective on life. When you have an experience
that forces you to come to terms with living and dying, your whole perspective
changes. My experience with Melanie forced me to make a contribution to
the community, and that contribution is ongoing even today."
Since her mother's death, Kilbourn has been on a mission to discover the connection between the mind and the body. She and fellow researchers Neil Schneiderman and Michael Antoni have been able to show examples of this connection. They have worked successfully with HIV-infected patients, helping them to maintain their immune status over time, using stress management interventions. They have identified a number of psychological factors that positively influence the body's immune system. They are beginning a similar study on female cancer patients. "When my mother was ill and dying, I felt like I didn't have any control
over what happened, and I never wanted to feel that way again," Kilbourn
explains. "Whenever I talk to families who are in a similar circumstance,
I try to help them so that they won't have to go through what I went through.
That way, my mom didn't die in vain."
Jones grew up in East Baltimore during the 1950s, an era in which overt segregation was still practiced. "We were called 'Negroes' then, and we lived behind a wall, not a physical wall, but a wall of deeply understood limitations on what one could aspire to, what work one could get, what constituted achievement," he explains. "Behind that wall my mother and father, my cousins and uncles worked
as janitors and stevedores, maids and hairdressers, garbagemen and steelworkers.
We made the beds, washed the floors, cut the grass, and cooked the food
in restaurants and hotels we could not be served in." He graduated from Union College in only three-and-a-half years, working two part-time jobs: as a local newspaper editor and a taxi driver. "It wasn't easy for me, but I survived it," says Jones, who then earned a law degree from New York University and went on to teach at Antioch School of Law in Washington, D.C., one of the most liberal law schools in the country. "Their mission was to follow the star of social reform, and that further focused my determination," he explains. Jones next went into private practice, trying civil rights cases. He later became an accomplished trial lawyer for the Equal Employment Opportunity Commission (EEOC). "I was very successful with the EEOC, but I felt that it didn't fit with my abilities or desires; I wanted to teach," he recalls. And so, Jones joined the faculty of the University of Miami School of Law in 1988. He is one of the most popular professors at the school and spends most of his spare time involved in community and government organizations working toward improving racial equality. "I don't talk about my personal experiences in class, but I draw upon them to help my students learn to think about things more deeply," he says. "When I was in law school, I was taught that there was only one view of the law, but I try to show my students that there are many ways to view the law. To me, that's what legal education is all about. Once they know about these different views out there, they can make their own decisions-but at least they know." Jones adds, "Martin Luther King once said, 'How long will it be [until we are free]?' and then he said, 'Not long.' But, how long is 'not long'? Instead, I'd like to ask, 'How far have we come?'" |
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Victoria Stuart is a frequent contributor to Miami
magazine. Photography by Donna Victor.
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