PLD Project Website Links & Resources

Disability
Links
These
links were developed in conjuction with the Fellows' Guide and to
be used by the PLD Fellows to do the research needed in order to
achieve their Plans of Action.
Fellows'
Guide 2005 (This
is a .pdf file, you must have Adobe
Acrobat Reader to open this file.)
This document was developed
as a training tool for the PLD Project Fellows. For more information
on this training please see our Adaptive
Leadership Practices section
or About the PLD Project - Design
of Training section.
FAMILY
- Issues related to home, sibling, in-home support, long-term
care, etc.
CHAMPS - http://apd.myflorida.com/champs/champs_article.pdf
Florida Developmental Disabilities Council -
http://www.fddc.org/home/index1.asp
Parent to Parent of Miami - http://www.ptopmiami.org
Florida Family Network on Disabilities -
http://fndfl.org/
Family Care Council - http://fccflorida.org/
Community Resource Guide 2004: For Families and Caregivers
of Children With Special Needs - Provided
by FDLRS-South
http://pediatrics.med.miami.edu/mailman/communityresource.pdf
National Center of Medical Home Initiatives for Children
with Special Needs - http://www.medicalhomeinfo.org/.
EDUCATION
- Issues related to early intervention, inclusive education,
educational accommodation, diploma options, natural environments,
quality programs, and staff.
The Council For Exceptional Children -
http://www.cec.sped.org
Office of Special Education and Rehabilitative Services
(OSERS) - http://www.ed.gov/about/offices/list/osers/index.html
Florida Directory of Early Childhood Services -
http://centraldirectory.org/
Early Steps (Florida's early intervention
program) -
http://www.cms-kids.com/EarlyStepsFamilies.htm
The Florida Department of Education Bureau of Exceptional
Education and Student Services -
http://www.firn.edu/doe/commhome/
Free Appropriate Public Education (FAPE) - http://www.fape.org
Teaching Resources for Florida Exceptional Student Education
- http://www.cpt.fsu.edu/tree/default.html
This website, developed by the Center for Performance
Technology at Florida State University, is designed to assist Florida
teachers of students with disabilities in implementing the Florida
Sunshine State Standards, including the standards for Special Diploma.
Resources available on this website include: the ESE Instruction
Manager, Life-Prep Curriculum, Accommodations, and a Glossary. It
also provides information on contacting the Center for Performance
Technology at Florida State University.
Miami-Dade County Public Schools official website
- http://www.dadeschools.net
WORK
- Employment opportunities, job training, job coaching,
transportation, etc.
The National Center on Secondary Education and Transition (NCSET)
http://www.ncset.org/
Department of Labor, http://www.dol.gov
Job Accommodation Network http://www.jan.wvu.edu
Vocational Rehabilitation - Worksupport.com, http://www.worksupport.com
Supported employment http://apd.myflorida.com/support_emp/index.shtml
Florida Division of Vocational Rehabilitation http://www.rehabworks.org/
Social Security Administration- Work Incentives Program (includes
information on SSI) http://www.mchbhrtw.org/ssawork
COMMUNITY
ACCESS/ PARTICIPATION - Equal access to recreational
opportunities, facilities access, attitudes of the general public
etc.
American Disabilities Act (ADA) - http://pediatrics.med.miami.edu/mailman/services2.htm#ada
Reauthorization of the Rehabilitation Act - http://www.ncd.gov/newsroom/reauthorizations/rehabilitation/rehabact.html
Yellow Pages for Kids with Disabilities
- http://www.yellowpagesforkids.com/help/fl.htm
Community
Resource Guide -
http://fdlrs-south.dadeschools.net/downloads/CRGconLinks.pdf
(This is a .pdf file, you must have Adobe
Acrobat Reader to open this file.) The
community resource guide is for everyone. It has all the information
needed for the parents of exceptional children, the educators
and the administrators in exceptional student education field.
This guide is available both in PDF (Acdobe Acrobat) format and
in HTML format.
CCDH, Inc - http://www.ccdh.org/
Information, referral and casemangement. For more information,
please visit their website listed below. Tel: 305-596-1160
Switchboard of Miami -
http://www.switchboardmiami.org
Offers community resources and case management
referrals to families and individuals with disabilities. A 24
hour / 7 day a week hotline is available free of charge for English,
Spanish, French and Creole speaking families in need of crisis
and emotional support. Telephone (305) 358-4357
The Children's Trust
- http://www.thechildrenstrust.org/
Recognizing that the needs of children in Miami-Dade County far
exceeds the resources and support systems available, The Children’s
Trust was created by voter referendum in 2002 as a dedicated source
of funding to meet those needs. The Trust, the staff and 33-member
board are committed to funding programs that offer the highest
possible quality services, with the goals of implementing best
practices and improving the lives of children and families in
our community
LEGAL
- Issues of accountability and monitoring, legislation, your rights
under federal, state, and local law.
Individuals with Disabilities Education Act (IDEA) http://www.ed.gov
Wrights law http://www.wrightslaw.com#advocacy
Council for Exceptional Children – IDEA Practices &
Law http://www.ideapractices.org/
SPECIAL EDUCATION & REHABILITATIVE SERVICES IDEA 2004 Resources
http://www.ed.gov/policy/speced/guid/idea/idea2004.html
Legislative Link by United Way http://www.successby6-fl.org./legis/index.htm
Part B of IDEA - http://pediatrics.med.miami.edu/mailman/earlycare2.htm#
Part C of IDEA - http://pediatrics.med.miami.edu/mailman/earlycare2.htm#c
I.D.E.A. (THE INDIVIDUALS WITH DISABILITIES EDUCATION ACT) Full
explanation of all sections, history of IDEA, documents, and websites.
http://pediatrics.med.miami.edu/mailman/earlycare2.htm#idea
Council for Exceptional Children (CEC) IDEA '97 Laws & Regulations-
http://www.cec.sped.org/law_res/doc/law/index.php
MENTAL
HEALTH - Issues related to quality of mental health for the family
and child.
Community Resource Guide 2004: For Families and Caregivers of
Children With Special Needs. http://pediatrics.med.miami.edu/mailman/communityresource.pdf
Florida Developmental Disabilities Council
http://www.fddc.org/home/index1.asp
FDLRS-South http://fdlrs-south.dadeschools.net/
Florida Council for Community Mental Health http://www.fccmh.org/
Systems of Care http://www.systemsofcare.net/
Crafting Logic Models for Systems of Care: Ideas Into Action http://cfs.fmhi.usf.edu/TREAD/CMHseries/IdeasIntoAction.html
MEDICAL
- Issues related to medical needs, physical issues, chronic illness.
National Center of Medical Home Initiatives for Children with
Special Needs http://www.medicalhomeinfo.org/.
Future of Pediatric Education II (FOPE II) http://www.aap.org/profed/fope1.htm
Florida Department of Health http://www.doh.state.fl.us/
DisabilityInfo.gov http://www.disabilityinfo.gov/
(See “Health” tab)
For additional disability
links please see the following web links.
Developmental Disabilities Online Database: Resources for Parents,
Families, and Consumers (http://miami.edu/disability)
- The purpose of this site is to provide a public
resource for parents, families, & consumers containing documents,
website links, and videos developed by the Mailman Center for
Child Development, University of Miami Miller School of Medicine
with support by the Florida Developmental Disability Council.
Parent
to Parent of Miami Resources - http://ptopmiami.org/new/resources/default.asp
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Leadership
Links
Fellows'
Guide 2005 (This
is a .pdf file, you must have Adobe
Acrobat Reader to open this file.)
This document was
developed as a training tool for the PLD Project Fellows. For
more information on this training please see our Adaptive
Leadership Practices section
or About the PLD Project -
Design
of Training section.
About
the PLD Project PowerPoint Presentation- This is
a program that will load a PowerPoint presentation, 2 video
clips, and a free PowerPoint Viewer (in case you don't have
PowerPoint). To open this file, download/save it to your desktop
and then double click on the icon. It is packaged this way in
order to keep the video clips with the presentation.
PLD
Training March 14th-16th PowerPoint Presentation-
This PowerPoint Presentation represents a portion of the training
session that took place on March 14th-16th 2005. This is a program
that will load a PowerPoint presentation and a free PowerPoint
Viewer (in case you don't have PowerPoint). To open this file,
download it to your desktop and double click on the icon.

This
Leadership and Systems of Care diagram was developed during
a training session/workshop by the PLD Fellows. It is based
on the social-ecological systems theory perspective (Bronfenbrenner,
1979) described below.
In
terms of understanding chronic childhood illness, the social-ecological
systems theory perspective of human development formulated by
Bronfenbrenner (1977,1979) has the most impact. The theory proposes
a series of concentric circles that represent settings that
have bidirectional influences on the child. The child is at
the center. The closer rings represent family and settings such
as school, and medical. The more distant circles represent societal
values and culture. The major tenets of social-ecological theory
include (a) reciprocity, the environment affects the child,
but the child also affects the environment; )(b) interconnections
and relationships between settings, which influence the child’s
development; and (c) transitions, shifts in role and setting
across the life span that have a developmental influence (Thompson
& Gustafson, 1996).
ADAPTIVE
LEADERSHIP PRACTICES:
Identify
adaptive challenges
Identify what learning, new skills, behaviors need to be acquired
Identify what loss will occur
Center Yourself- Find a quiet place within yourself/breathe.
Give work BACK- Involving others and holding them
responsible for their piece of the work.
Holding Steady- Not backing down.
Get on the “Balcony”- Step back and see
the big picture. In the midst of action, recognize each person’s
position. See what they can offer and the constraints that
are holding them back from acting in the situation.
- Distinguish
between Technical and Adaptive Challenges
- Technical
Challenges- Are problems we know how to solve
- Adaptive
Challenges- Require learning and changing people’s
hearts and minds. Most social problems are adaptive
challenges.
- Find out where
people are at.
- Listen to the
song beneath the words- Listen to what’s not being
said by reading authority figures (and others) for clues
by looking at non-verbal signals such as body language and
other social clues.
Additional
Adaptive Leadership Readings
Article titled,
"A conversation
with Ronald Heifetz: Leadership without Easy Answers"
By Joe Flower for The Healthcare Forum Journal. (This
is a .pdf file, you must have Adobe
Acrobat Reader to open this file.)
Ronald Heifetz,
M.D. is co-partner with Marty Linksky of the Cambridge Leadership
Association (CLA) and co-author of Leadership
on the Line: Staying Alive Through the Dangers of Leading*.
*
Heifetz, R., & Linsky, M. (2002). Leadership
on the Line: Staying Alive Through the Dangers of Leading.
Harvard Business School Press, Boston, MA.
For more information about Adaptive Challenges
and Leadership Practices see our Adaptive
Leadership Practices page.
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Links
for The PLD Project collaborating organizations:
University
of Miami School of Education
- http://education.miami.edu/
University
of Miami Mailman Center -
http://pediatrics.med.miami.edu/mailman/mailman.htm
Parent
to Parent of Miami - http://ptopmiami.org/
Herald article on
Parent to Parent
(This is a .pdf
file, you must have Adobe
Acrobat Reader to open this file.)
Florida
Department of Education,
Bureau of Exceptional Student Education
-
http://www.firn.edu/doe/commhome/
The
Children’s Trust -
http://www.thechildrenstrust.org/
Cambridge
Leadership Associates (CLA)
-
http://www.cambridge-leadership.com/

For more information
on the PLD Project or collaborating organizations,
please see our About PLD page.

For
general information about the PLD Project, please e-mail James Kohnstamm
at:
jkohnstamm@miami.edu
For
any issues related to the website or any general comments, suggestions,
or for assistance, please contact Amy Brennan at abrennan@med.miami.edu
Created
by: Amy
Brennan
Last Updated:
July 19, 2005
Copyright
© 2005 University of Miami.
All rights reserved. Disclaimer
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