Sheri Flamenbaum was thrilled to discover
she was pregnant with twins in 2001. She was devastated
two years later
when her twins were referred to the Debbie School at the
University of Miami Miller School of Medicine. The twins
were diagnosed with developmental delays and hypotonia,
or floppiness. At age 2 1/2, Haley was at the level of
a 15-month-old child; Alec was like an 8-month-old. “A
little knowledge is a dangerous thing,” says Flamenbaum.
All the former physical therapist and UM alum knew of the
Debbie School was the classroom it had for profoundly disabled
children—and she was terrified to think that “my
children belong there.” But “once I got into
the Debbie School, it was the most wonderful experience,” Flamenbaum
says. “Everybody there, from their teachers to the
bus drivers to the custodians to the administrators, loves
and knows every child by name. My children had the best
of everything—the best therapists, the best programs,
the best education. I knew nothing about the Debbie School,
and I’m now one of its biggest cheerleaders.” The
path to the Debbie School was different for
another mother. After seeking second and
third and fourth opinions,
Carladenise Edwards was eager to send her son, William,
to the school for its Auditory/Oral Education Program.
The toddler had been diagnosed with moderate to severe
bilateral hearing impairment and started attending the
Debbie School’s summer camp. “We saw progress
the first week,” says Edwards. “He really
started to communicate, and we’ve kept him there
ever since.” Now 3, William is enrolled in the
program full time and continues to improve his communication
skills. “He’s
receiving therapy every day,” Edwards says. “Our
only other option was to send him some place where he would
receive therapy once a week. There just aren’t
enough therapists to go around.”
Joining William at the Debbie School
is his 16-month-old sister, Zora. The “typically developing” child
is also thriving at the school. “She’s building
self-esteem and confidence and leadership skills. I’m
really pleased with her progress,” Edwards says.
The Debbie School (also known as
the Debbie Institute) “is
one of the gems of the Mailman Center for Child Development
and the Miller School of Medicine,” says Daniel Armstrong,
Ph.D., professor and associate chair of the Department
of Pediatrics and director of the Mailman Center. “Parents
of children who go there gush about their child’s
experience, regardless of whether the child has a disability
or not.” A higher than average teacher-to-student
ratio, coupled with early intervention research, training,
and service, make the school popular for parents of
both typically developing children and children with
disabilities.
The enthusiasm doesn’t end when the child leaves
the Debbie School. There are few research/service programs
like the Debbie School that inspire gratitude for more
than 20 years,” Armstrong says.
The Debbie Institute was built in
1972 to house early education programs for young children
with disabilities.
The institute
conducts research on problems impacting children with
special needs and provides early intervention services
for children
and their families. It also offers training for University
students interested in careers ranging from special
education to physical therapy. The institute is a designated “demonstration
school” where students from many different disciplines
come to research and learn different techniques and faculty
members apply different models of teaching gleaned from
research. Originally called “laboratory schools,” demonstration
schools are the “scientific arenas in which professionals
experiment with new ideas that advance teaching and learning,” notes
Rebecca Fewell, Ph.D., who directed the Debbie Institute
from 1991 until her retirement in 2002.
The results of research studies
from demonstration schools are often key to shaping
public policy. In
1975 education
for students with disabilities began to change with
the passage of the Individuals with Disabilities Education
Act (IDEA). A National Education Association publication, NEA
Today Online, reported that as late as the mid-1970s
an “estimated one million kids with disabilities
didn’t even attend school. For disabled children
who did attend school, special education usually meant
placement in a special class or a special school.” A
series of amendments to IDEA in the 1990s mandated
moving children with disabilities into classrooms with
typically
developing peers.
The Debbie School was one of the
first schools that provided “a
model for early intervention for young children with disabilities,
which was then transitioned to Miami-Dade County Public
Schools and is now known as their Prekindergarten Program
for Children with Disabilities,” says Kathleen Vergara,
associate director of the Debbie School. The school was
one of the first in the country to research—and then
advocate—placing both typically developing children
and children with special needs in classrooms together.
It was a hard sell at first. “Parents of children
with disabilities thought teachers would only pay attention
to typically developing children, and parents of typically
developing children thought their children would imitate
the children with disabilities,” Vergara says. A
generation of children has now grown up “comfortable
with children with disabilities and their differences.
And the gains for children with disabilities have been
greater than predicted,” Vergara says.
Vergara heads a staff of about 60
who serve the school’s
three separate programs for children.
The Early Education Program serves
80 children with developmental disabilities from birth
through 3 years
of age with their
peers. The program includes six “inclusion” classrooms
as well as one self-contained classroom for children
with severe disabilities.
The Auditory/Oral Education Program
serves 35 children who are deaf and hard of hearing
from 12 months to
8 years of age, and the Infant-Toddler-Preschool Education
Program
has approximately 45 typically developing children
between
the ages of birth through 5. Families pay tuition to
support those services—the Early Education and Auditory/
Oral Education programs are supported by contracts with
Miami-Dade County Public Schools and Children’s Medical
Services, while summer services are funded by The Children’s
Trust.
“The Auditory/Oral program is also an inclusion
program,” says
Vergara. “The children are together from the
time they’re 1 until they move out into kindergarten.
The more time they spend together, the closer they
become.”
Alec and Haley Flamenbaum were referred
to the Early Education Program after having been diagnosed
with
more than a 25
percent deficiency in one or more areas. They became
eligible for fully funded education from the State
of Florida. “To
me, it was a handout, and that had a stigma,” admits
Flamenbaum. “I thought I would be treated differently
because I wasn’t paying, but I never felt out of
place—it always felt like home.
“But the most important thing is the quality of education
and the care they received,” Flamenbaum says. “The
amount of disabilities these children come in with
and overcome because of the school’s stellar
staff is incredible.”
In addition to its educational programs, the Debbie
School is engaged in several studies designed to improve
the education
of both disabled and non-disabled children. Among those
projects is the DEB-Tech Project, originally funded
by the Health Foundation of South Florida, which is
developing
a model program on providing up-to-date assistive technology
for special needs children who are educated in inclusive
classrooms with their typically developing peers.
Vergara says the DEB-Tech Project
helped create guidelines for the best practices in
assistive technology usage
in classrooms. Through funding from The Children’s
Trust, the Debbie School has expanded the DEB-Tech
Project by
providing workshops on how to use assistive technology
at child care centers throughout Miami-Dade County.
Outside of the Debbie School, students and teachers
from all over the state benefit from its research,
including
former pupils.
After attending the school for a
year, Alec and Haley Flamenbaum are now almost 6 years
old and in kindergarten
at a Miami-Dade
public school. They come back to the school every year
for summer camp. Their mother obviously still holds
the school dear: “My husband and I may have created our
beautiful twins, but the Debbie School gave us the children
they were meant to be,” she says.
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