When
Skylar Lewis was 3, her hair started to fall out in clumps.
It began with a small bald spot on the back of her head,
and by the time she was in fourth grade, she was completely
bald. She was diagnosed with alopecia areata, an autoimmune
disease that results in the loss of hair on the scalp
and the rest of the body. That’s when she asked
her parents if she could get a hairpiece, and they turned
to Locks of Love.
“It did change the way people reacted to me,” Skylar
says, “You know how kids can be. I kind of got
ridiculed because I was different. But it wasn’t
all bad. Some people were curious about what was happening
to me and asked me about it. I realized I could make
it a good thing or a bad thing. I try to make it a
good thing by talking about it.”
Alopecia areata affects nearly 2 percent of the U.S.
population, or about 4 million people, and has stricken
famous people such as film star Humphrey Bogart, American
industrialist and philanthropist John Davison Rockefeller
Sr., and actress and motivational speaker Margaret
H. Baker. Now the search for a cure to the disease
has gotten
a $350,000 boost in the form of a gift from Locks of
Love to the Department of Dermatology and Cutaneous
Surgery at the University of Miami Miller School of
Medicine.
The gift will support research and an annual symposium
on the disease.
“This very significant gift from Locks of Love
will allow us to advance basic science research, clinical
care,
and physician and public education about the devastating
effects alopecia areata has on millions of sufferers,
especially children,” says Lawrence Schachner,
M.D., professor and chairman of the Department of Dermatology
and Cutaneous Surgery at the Miller School. “We
are honored this wonderful organization has chosen
our medical school and department to be the recipient
of
this gift.”
Alopecia areata affects both sexes and people of all
ages and ethnic backgrounds. It often begins in childhood.
The first symptoms of alopecia areata are usually one
or more small, round, smooth bald patches on the scalp,
but the symptoms can progress to total scalp hair loss
(alopecia totalis) or complete body hair loss (alopecia
universalis).
Locks of Love is a Palm Beach County-based charity
that provides custom-fitted hairpieces to children
living
with long-term or permanent medical hair loss. In less
than ten years, Locks of Love has provided 2,000 hairpieces
to children in all 50 states and in Canada.
“We are excited to enter into a new phase of
our mission to help children living with alopecia by
providing them
with hope for a successful treatment,” says Madonna
Coffman, president of Locks of Love. “Because
of my direct association with Dr. Schachner over the
past
nine years, the University of Miami was the obvious
choice for this gift. We are hopeful the research will
bring
us closer to one day finding a cure for this life-altering
disease.” |